I
arrived at the hospital early this morning to check in for my EEG; they told me
I had the penthouse suite with a view of the mountains, and let’s just say, I
couldn’t argue with that! After filling out paper work, I was taken up to my
room where they did a quick assessment before attaching the electrodes to my
scalp.
I
sat down in a chair, and the EEG Technicians started measuring my head so that
they could properly mark the places on my scalp where the electrodes were to be
placed. 45 minutes, and twenty-something wires later, I was all ready to go. All
of the wires that were attached to my scalp were then plugged into this little
piece of equipment that goes into what I call, “my purse”. Two cameras
constantly monitor me, and whenever I have a seizure, I press this red button
that turns the light on and alerts the staff that I have had a seizure.
Five
hours later, after cutting my medication in half and trying to stay awake, I
finally had a seizure! It was like one of my usual Simple Partial seizures, but
a little more intense. The staff rushed in and did the usual protocol: they
come in and ask simple questions such as, “Where are you?” and “What year is
it?” to gage my awareness. The seizure passed, and it was crazy to think that
for the first time in two years, having a seizure was a good thing! I had
another seizure about 3 hours after the first seizure of the day.
Recorded
Seizure Total Today: 2
I’ve
had to acclimate to hospital life: lying
in bed all day, eating three meals a day on a schedule, people coming in and
out of the room to check up on me…or that they just walked into the wrong room
(it happened more than once)! How I managed to get a 30-minute nap in during
all of this, I’ll never know!
This
sounds relaxing, but I’ve been stir crazy! I passed the day with James Bond,
nail care, TV seasons, and hanging out with my mom; my dad visited later. I had
a few moments of frustration today, but I had to realize that this is going to
help find where my seizures are coming from.
Audrey, I was sad to hear about your cancelled summer plans. I know we were looking forward to having you around again this year. But, I am really happy to hear that you are going to learn more about your seizures and that you will, hopefully, get some answers. I will continue to follow your journey and I wish you the best!
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